H-IV Negative &/or Still Twisted After All These Years
October 27, 2011
It came up again today, which doesn’t happen very often. Someone asked me how I could possibly be H-IV negative when I’d had a baby with a man who was H-IV positive.
I began to stutter. The fear is never completely gone, it’s always there, at least the memory of it.
Such a crazy time it was, pregnant at 25 by a guy with this new disease I’d barely heard of but knew could kill me. A disease I couldn’t talk about because people would run, shun, shy away, freak out, even those in the medical profession. I had to keep it to myself and make life and death decisions and still go to work every day even though it felt like my world was ending.
I chose to keep the baby. I chose to stay with the man. I wasn’t brave, more like fearless. I didn’t know enough to make informed decisions.
I was tested once, twice, three times, four, sure my luck was eventually going to run out. But it didn’t happen that way.
* * * * *
Now I know the chance of transferring the H-IV infection through a single episode of heterosexual unprotected sex is 1 to 2 women in 1,000. I know that I probably saved my own life by saying no the one and only time it really counted, when I refused to have anal sex, bluntly, loudly, definitively.
Say it loud, say it proud, don’t touch my ass.
I saved my kid’s life, too.
When I think of what other women went through, those who found themselves positive, discovered their children were positive, I could dry heave with sorrow and terror.
* * * * *
I kept this secret for so many years. It didn’t even seem like a choice.
I’ve had some difficult things to get through, like every human being on the planet, but man have I been blessed. I won the lottery of life. The good by far outweighs the bad.
I would lose 1,000 parents rather than a child. I would take a million fucked up mothers over finding out my baby was going to die from AIDS. There is no comparison.
Some of the things that happened were scary and humiliating and sad. But in the end I walked away with the most wonderful bouncing baby boy, who never gave me a moment of trouble, who has lived a charmed life as if protected by angels.
I have no doubt they are his father and his uncle, funny, bright, charismatic, beautiful men who made the simple mistake of putting needles in their arms to dull life’s pain, to catch what was once a random irresponsible high and became a life sentence.
They were behind me during his graduation from graduate school. I swear I heard them laughing like excited boys, saying “Look at him! You did good, Bub.”
It was all so worth it. I need to remember all the ways in which I have been the luckiest bitch on the planet and forget the rest.


October 27, 2011 at 10:00 pm
Ironically I read this while watching “Stan Lee’s Super Humans” (for the first time ever and probably the last). Perhaps you and your son should give Stan Lee a call. That is some weird and wild stuff. Down right freakishly bizarre. I can see why this story would leave people scratching their heads. How can it be? The world may never know.
October 28, 2011 at 6:53 am
You and you’re son were very lucky. Refusing anal sex is one thing, but honestly, one should NEVER have sex with an HIV pos. person without a condom, anal or other. 1 to 2 in a thousand is still a lot, regarding the consequences. Death. I understand love, I understand lust, but I do not understand people who claim condoms take the fun out of sex or are inconvenient. Well, I myself think having a terminal disease is inconvenient…so I buy condoms and flip ‘em on!
It’s different if the partner does not know about the infection, or even the infected does not know him/herself…I cannot imagine what t was like back then. When sex became an issue for me, HIV was fully accepted and the schools and doctors did a great job in informing us kids and handing out condoms and adresses for help. It must have been so hard for you back then, as you mentioned, the stigma, the shunning…the lack of information and help. I love the fact that you and your son got out of it alive and thriving, I am deeply sorry for your (first) husband. I hope those guardian angels will always look after you too and I bet they’re proud as hell!
October 28, 2011 at 10:58 am
Thank you both for the comments
I’m not sure I made it completely clear, but yes, Anni, we didn’t find out he was H-IV positive until I was about 3 months pregnant. I didn’t find out he was an IV drug user until we were living together. Coming from the fields of Illinois to San Francisco, working in a federal halfway house, I was a naive 23 year old with so little life experience I just didn’t recognize the signs..
I don’t know how unusual we are . . . I’ve never met anyone who had this same experience but I know they’re out there, obviously. Statistics report it’s much easier to get pregnant than to transfer H-IV, even though male to female rations are higher than female to male. Circumcision matters (he was), the fact that I had no other veneral diseases (I didn’t), his viral load at the time (evidently it seems perhaps he’d been a carrier long-term rather than short), his drug addiction (which kept his sexual interests diminished), and the fact that (thank God) I wasn’t a drug user . . . all combined to protect us from infection.
Although certainly a big part of me wonders about pre-ordination since it’s hard to believe I could have walked about just on luck alone. And the fact that the two of us, a couple of idiots, turned out the kid that we did . . . just freaking amazing
It’s hard now to believe I was that girl, it’s been so long ago. Refusing to wear a face mask in the hospital (such an idiotic idea for a disease that’s not airborne, although they didn’t know that then); grabbing his IV line spewing blood around the room when it came loose, cause I didn’t care at that point. Although I wasn’t the best companion for him, I stuck it out, and it’s one of the things I’m the most proud of, that I stayed with him until he died. He had his flaws, but he was a wonderful guy in so many ways.
As always, thanks for listening.